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Find the support you’re looking for, and learn more about the disease and treatment

Support patient hero mob

Find the support you’re looking for, and learn more about the disease and treatment

There is a community of people living with MLD and a network of doctors, caregivers, and specialists to support you

Support organizations are here to help during the difficult journey of caring for yourself or a child affected by MLD. Resources such as family support groups, awareness events, literature on the disease, doctor contact information, support for siblings, and more are available.
Learn more about a treatment option or locate a treatment center

A mother’s MLD journey

Hear directly from one mother about her family’s experience with MLD, from noticing the first signs and symptoms to getting an accurate diagnosis, how MLD has affected her family, as well as her thoughts for other families.
MLD: Understanding the Disease and Its Impact
MLD: Understanding the Disease and Its Impact

Watch the full video, or explore the key moments through short, chapterized clips. Click the Next Video button to find shorter clips of this full video, breaking the content into smaller, easy-to-digest information.

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MLD: Understanding the Disease and Its Impact
MLD: Understanding the Disease and Its Impact
Chapter 1: Initial Signs and Symptoms
Chapter 1: Initial Signs and Symptoms
Chapter 2: The Dangers of a Missed or Delayed Diagnosis
Chapter 2: The Dangers of a Missed or Delayed Diagnosis
Chapter 3: MLD Is a Rare Genetic Disease
Chapter 3: MLD Is a Rare Genetic Disease
Chapter 4: Coming to Terms With MLD
Chapter 4: Coming to Terms With MLD
Chapter 5: Impact of MLD on a Child
Chapter 5: Impact of MLD on a Child
Chapter 6: Impact of MLD on the Whole Family
Chapter 6: Impact of MLD on the Whole Family
Chapter 7: Early Diagnosis Is Crucial
Chapter 7: Early Diagnosis Is Crucial
Chapter 8: For Families Living With MLD
Chapter 8: For Families Living With MLD
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